Jackson has been on growth hormone for almost a month now. Unfortunately, we have seen no benefit from it yet. I am not sure if it takes longer or if we are just the unlucky ones who just aren't going to see any increase in energy with it. We are beginning to feel like we are spinning our wheels at times. We have made virtually no progress over the last year since stopping treatment. His speech is still not understandable by most. He still can't walk without assistance and he is still exhausted ALL the time. The picture is of Jack after he fell asleep at 10:30 am in the middle of his home class. We are still going strong with the ABA therapy at 25 hours a week. He does speech, physical and occupational therapy and of course still rides Princess on Saturdays. This Thursday and Friday I am going to take Jackson to a new school to view it. It is a pre-k class for kids with autism. The ratio is very good, the teachers are very hands on and I am hoping that he will like it. Our last experience with the school district was not so good so we are a little skeptical but keeping an open mind. In October, we are starting Hyperbaric Oxygen and Intensive Suit Therapy on the same day. My research seems to indicate that you get the greatest benefit by doing them concurrantly, so that is what we will do. We are also getting him hearing aids to help him hear high frequency speech sounds. We have been fitted for them and ordered him some fancy blue ones so that they will match his glasses and his leg braces.
Our next MRI is September 28. To be honest, I have been so preoccupied with his development, or lack thereof that I haven't given it much thought. I am sure as it gets closer though I will feel the nerves.
Also, since our last garage sale was such a success, we are having one more on Sept. 11 at our house. This time all the proceeds will go to help us pay for Jack's upcoming therapies. If you have anything you'd like to donate for us to sell, we'll gladly take it off your hands. Email me at and we can come pick it up. If not, come shopping or just stop by and say hi, we have lots of good stuff and would love to see everybody.
Thanks for checking in. We'll keep you posted on the new school.
I am so very very sorry there has been no progress. I pray for Jackson all the time!! I am thinking of you!! You are doing everything right, Mama!! Much love!!
Keri and Kelly, your amazing strength continues to shine as you advocate and try new ideas to help Jack forward. We will always be at your side, praying in unison for his short-, medium-, and long-term health and well being. Our collective prayers have brought miracles before, and together we can keep it going!!
We don’t get to see him nearly enough, but we were excited to watch him put those puzzles together at the last family gtg. That was a huge step from the last time we saw him attempt that, and the look of triumph on his face was beautiful!
Please keep us updated, and let us know how else we can help! Good luck to both boys at school! We love you all!
Thinking of you little one. I hope your energy levels improve. Lots of luv and kisses from drew and carrie xoxo9
I luv how u keep us informed....thank you!!! Mom
Jack and Wy are blessed to have two of the most loving and devoted parents ever. I sincerely hope that with his new therapies and school there will be some improvements. I continue to gather items for Sept 11 and am looking forward to being actively involved in the next fundraising effort for Jack. I am thinking a spaghetti fundraiser sounds yummy! Any input from TEAM JACKSON members would be much appreciated!!
We are keeping our fingers crossed that everything goes smoothly and that you get what you hope for out of all of it. We are here for you if you need us....even if it’s just to vent! We love you guys and see you soon!
Hello Jobe Family!
Just wanted to stop by and lend my support. I’m sorry to hear that the growth hormones have not helped with Jackson’s stamina. My hope is that maybe the GH needs to build up in his system some more before all of the benefits kick in. Let’s hope so! I’ll continue to send lots of prayers your way for an improvement in Jackson’s stamina. He is such a cutie pie! I’ll be praying for a STABLE scan later this month, as well. Thank you for the update! I love to read up on how Jackson is doing!
Take care!
Monica Cortez
Keep moving forward, Jackson! You are an inspiration and you have the best mom and dad and little bro going, so keep the faith. You guys are always in our thoughts and prayers.
We need to plan another playdate. Miss you and your darling boys!!!
Hey there Jackson, I know it must be tough for mom and dad. And I definitely know this must be hard on you. However our family continues to have you in our thoughts and prayers and faith makes me believe things are going to get better.
I know your speech is delayed, as well as is your growth and I am sure the use of the braces and hearing aides must be hard to deal with. But the one super most thing I am grateful for is that you are there with your family and not in a hospital connected to all those wires and poles. I am thankfully daddy isn’t picking out the green things from your texas toast anymore and I am thankful we aren’t praying for you to be able to keep your fatty cakes down. Jackson, you and your fabulous family give all of us non-superhero families hope and inspiration. Keep up all of the efforts and who knows one day if we are super lucky you may be running and making your own high pitch sounds fighting with Wyatt that your mommy & Daddy won’t want to hear!! ; )
Always thinking of you guys,
Patricia, Juan, Tommy and Nicky
P.S. Good luck in the new school.
Hi Jackson and Wyatt and Jobe Family, keep up the good work milkman, one of the therapy’s is bond to work. Give you parents a big hug for all there hard work to make you talk/walk etc. I will stop by to see what i can buy on 9/11. Luv you all.
p.s. a spaghetti feed sounds great!!!!!!
You guys continue to amaze us with your dedication and energy. We’ll keep our fingers crossed for the new therapies and the MRI, and hopefully we’ll be able to stop by on Saturday. You know you’re always welcome out here.
Keri-
We continue to keep your family in our prayers. Keep the faith. I know progress might seem slow, but you never know what the future holds. We will pray for improvement on all levels.