Most of you who follow our website haven't seen Jack since before he was diagnosed.  If you haven't seen him it is hard to imagine just how hard treatment has been on him.  He is now four and a half years old and yet his speech is like a 2 year old.  I know this because Wyatt is 2 and a half and is quickly surpassing Jackson in his speech and comprehension.  Not only is his speech limited but it is also very hard to understand.  I understand all of it, but I am the only one.  Jackson is also not potty trained, nor is he close.  He cannot walk up or down stairs and cannot run.  For the past six months he has been so tired that he often just lays down on the floor and stares off into space.  During his first week of school, most days when I picked him up thats what he was doing, laying on the floor and staring.  And most days it just breaks my heart to see.  I will admit that I am not used to his school yet.  It is very hard for me to see all of the children with varying degrees of disabilities on a daily basis.  I have watched parents drop of children bigger then them, kicking and fighting and then have sat and watched as the parents break down in tears... it is heartbreaking to see the children but it also tears me apart to see the parents, who work so hard every day just to make sure there kids get a chance at life.  It has been emotionally draining on me but I know that he needs help and so I will put a smile on and continue to drop him off.  We have seen virtually no improvement in the last six months until this week.  Just this week...... when I pick him up at school he has been standing up and trying to play with toys, he is also commenting on things he sees, and he is eating again.. eating alot.  He now eats PB and J's and Mcdonalds hamburgers..........probably not exciting to most people but every bite of protein that goes in his mouth feels like a victory to me.  We finally have a glimpse of some much needed hope.  

We are still working hard at the sleep issue... he now gets melatonin every night and benedryl some nights and yet wakes up most mornings at 4 am.  We have had a few 6 am mornings which always makes us smile but 4 am is the norm around here.  Needless to say we are tired. Our next MRI is also coming up in a few weeks which of course adds to our stress.  

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