Jackson is doing pretty well. He is still tired and has his moments of crankiness but he is also seeming a little more grown up when it comes to treatment related neccessities. He now wears his glasses every day. He also takes his oral meds with less of a fight. He cringes a little but doesn't kick and scream like he used too. He also asks for juice immediately after taking the meds. This seems like a small thing to most people but it is a big change for us. He has started coming out of the fog he has been in... he seems to understand a little more that he must take the meds and juice makes it taste better. He is also becoming more comfortable around people. In fact, at our Endocrinologist appointment he reached for the doctor and had the Dr. hold him through the whole meeting. Six months ago he would not go near a Doctor. Small steps, but we will take it!
The Endocrinologist did confirm that he has low growth hormone. This means he will not grow like most kids. He can take growth hormones to remedy the problem but they don't start them until he has been off treatment for at least a year. So, for now he will stay his same adorable size and he and Wyatt can share clothes.
We did labs on Tuesday and his platelets are low, we will retest on Monday to see if he needs a transfusion and in the meantime, no rough housing for him and Wy Wy.
Our next MRI and chemo round is July 28th. Please, keep Jackson in your thoughts and prayers as he continues to battle on!
Milkman,
Way to be 4!!!!! Auntie Poe Poe is so proud of you, being such a strong fella and way to go on the glasses, keep up the good work and I think of you everyday but extra prayers on MRI day. Enjoy the 4th of July and fireworks with brother and family.
Love you lots.
xo xo xo xo
Jack- you are a champ! Small people are awesome! Happy 4th of July, I wish I could see your face light up watching the fireworks, I bet you and Wyman will love ‘em.
Love,
Sam
Wow!!!?? What a difference 4 can make!! First you start wearing your glasses and then you catch on to the concept of taking those pesky medications....wow....so very proud of you Jackson.
As for the growth thing, my boys are almost the same size too, my almost 5 year old wears the same size as his 3 year old brother! In the end it just means that laundry for mommy & daddy is alot easier and people will always ask if you are twins!!! Tommy loves setting people straight as to who is older!!
Keep on fighting Jackson, Team Jackson will keep on praying and hoping. Happy 4th of July Jobe Family, may the fireworks bring many giggles and smiles to your boys.
Patricia, Juan, Tommy & Nicky
I love your glasses, you look so adorable or now a 4 yr old I better say handsome and your meds wow I am so proud of you. Your mommy writes a nice journal, Daddy does too, always makes Gooma shed a tear or two. I love each and everyone of you! And I pray for you all..............Gooma
Hi Jobe Family,
Hope you enjoyed all the fireworks this 4th!! I was just checking in to see how things are going and it sounds like small steps are good steps. You have come so far in this last year so keep doing what you’ve been doing, get stronger every day, we are praying for you and sending our love, Missy and family
I just wanted to check in on Jack. I pray his blood levels have increased and he doesn’t need a blood transfusion tomorrow.
I hope you had a nice 4th with your family. Thank you for emailing the adorable picture of the boys on the 4th. We miss you! Thinking f you all always!!!
Oh little big man! So grown up taking your meds without a fight. Many adults don’t even do that! We’re so proud of you and your family for your strength in your every day battles. The tractor is hooked up to the hay trailer whenever you and Wyatt want to come out for a ride.
Flapjack! You are truly my hero. And i must say that you rock! Go team Jackson.
I love you!!!! And WYWY too.
P.S. Love the glasses. Sooo handsome
hi Jack,
we think you are doing great and look cute in your glasses.
Keri, here’s sending you good thoughts and salute! Thanks for your constant update.
Davina is just enjoying our last week here in Singapore before heading back home to Jakarta. There’s been no concerns so far and she’s been active and well.
Hugs,
Frida.
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