Thankfully, we don't have much to report this week. Jackson's energy is still pretty good although his sleeping habits are a bit, how do we say this nicely, crazy!! He has taken to waking up in the middle of the night and staying awake for several hours, just laying in bed and playing with something... his shirt, his diaper, my hair... whatever is in reach. Sometimes he yells "Milk" in a screeching fashion but usually he just lays there awake. He has bags under his eyes and is a little cranky but overall still playing and having alot of fun. He does weekly blood draws and his counts have held strong.... he seems to have cruised through this new maintenance chemo we are doing, which is great. So far, the worst part of it is the high doses of accutane he is on which has made his skin blotchy and dry.
We are slowly trying to re-socialize him and have had some playdates with his cousins and friends. He is very shy, a little uncomfortable and very clingy around other kids but seems to be doing better each time, so we will keep trying.
We go to SF again next week for his IV antibiotics. We also have an upcoming eye doctor apointment to check his vision and what we think is a lazy eye. We have our next round of chemo and MRI in less then three weeks and we are already feeling sick about it. I am not sure how you ever get used to this new life of every 3 month MRI's but I don't think they will ever get any easier. Thanks again for checking in on us. We could not have gotten through all of this without the support of our family and friends!
I love seeing the photos of Jackson outside!! Finally some fresh air and a new environment!!
As for the crazy hours...well, I guess you are experiencing college life a little early. Sometimes you know you need rest but your body just won’t do it!! And as for your “playdate” as with everything a little practice and patience will make it all be just fine. I am very happy to hear that you and Wyatt are getting your social groove on again!! Enjoy every minute of it too.
Patricia, Juan, Tommy & Nicky
Hi Milkman, way to yell “milk”!!!! And im glad you got to enjoy the fresh air this week, today was “hot” to my terms. And Im glad you are getting to spend time with some of your friends. I know they have missed you.
You have a fun weekend and now that I love you and wy wy and mom and dad.
xo xo xo xo
Hey Jack, That is awesome you are finding time away from your treatments and recovery to play with your buddies. Ouch on the sleep situation Keri
. You guys are awesome parents. Let us know if you need anything or want to visit the petting zoo . We think about you guys often. The Daily’s
Hi Jobe family
I must start off my post saying JJ you are amazing. I have been so fortunate to see Jack a few times recently and I can report each time I see him he is adapting/improving so well to those around him. He sat with me alone at a table and smiled at me while having a snack and let me help him off his chair to go to his Mom.
I am certain the upcoming MRI’s never get easier but the Team Jackson members just keep on praying for good results. Hope you are enjoying your weekend
See you soon!
Hi Jackson!
I hope your doing good I think about you all the time. I hope your having fun with your cousins. We pray for you every day. I hope you have a happy Easter!
Love,
Bailey
Jack Jobe is THE MAN!! Here’s to a great MRI...and many more to follow.
Hey Jackson!! I hope you are having some fun with your cousins and getting out and about! I sure hope I get to see you soon, I’d love to play some ball with you!
It’s been great to see you guys walking around the neighborhood! If they ever let you slow down, feel free to stop and talk. And if you want other play dates, we have Avi all day Tuesday’s and Wednesdays, and Friday mornings. I mostly have him Tuesdays (except for 12:30 - 1:30 when I have a client and Steve takes over). Steve mostly has him on Wednesdays. Just let us know!
Here’s to you, Jackson!
Gretchen & Steve
Hi everyone. Just checking in to say hi. I saw a video clip of jack, and I think he looks amazing!! I’m sending good vines jacks way for the MRI. Luv you. Xoxoxoxox auntie CARRIE
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Just thinking about you guys. Sounds like Jack the Super Hero is doing great! I’m so glad to hear the news! Keep the positive energy flowing.... Continuing to send you all our love and prayers..
Love,
Kelly & Family
Way to go Jack! You are such an amazing little boy and I think about you everyday. Today at school me and Miss Jennifer and Miss Sara and Miss PAtricia were talking about how much we miss you and the Wy man. And I Miss talking to your mommy in the morning when she would drop you off. We all love you soooo much. Call us sometime. Love you Flap Jack!
We just thought it would be fun to say hi, ‘though now we get to enjoy catching up in person! We absolutely love our cousin playdates, and I think Jackson is doing phenominal, all things considered. Brendan just loves being around Jack, regardless of whether Jack needs his space. And Wyatt is always full of entertainment and sweetness!!
We missed you guys this week but hope to see you next! Have a great weekend!