We apologize for taking so long to update our site but our week has been busy.  First, Jackson handled the stem cell transplant like a champ with no complications.  The nurses were correct, however, the smell was atrocious and did resemble a very strong, very bad smelling creamed corn.  The day after the transplant we were sent home.  Of course, we were sent home with more nursing supplies and medicines then you can imagine.  We are now trained to give some medicine through his broviak, we also hook him up to a hydration bag at night, which comes with the standard green and red lights and some beeping, similar to Jack's friend "Pole".  In addition he gets oral medicine morning, noon and night, which he has learned to spit right back out at us.  Our biggest hurdle this round is food.  I have spent the majority of my day in the kitchen preparing every food Jack has ever eaten and then some, only to get the same response... "Icky".  Sometimes icky is said softly, sometimes it is yelled but it a very consistant response to all foods.  We have pulled out all the stops with even the Burger King fries getting a not so warm welcome.  Kelly has had the task of eating various foods to try to make them look appealing, so while Jackson has lost 2 pounds, Kelly has gained ten. Wyatt has the job of eating all the food that Jack rejects, so he is eating like a king and has now slept through the night twice in a row.

We have heard that taste buds change, that food takes on a metallic taste and so food has now become our issue.  We are going to try again today but will most likely have to return to the hospital for some IV or tube feeding......Thank you for checking in on us, we'll keep you posted.